Research & Policy Trends in Caregiving

“Families Caring for an Aging America,” provides an overview of the prevalence of family caregiving of older adults and its personal impact on caregivers’ health, economic security, and well-being. The report also examines evidence on the effectiveness of programs and interventions designed to support family caregivers, and concludes with recommendations for developing a national strategy to effectively engage and support them.

Families Caring for an Aging America


Valuing the Invaluable: 2015 Update Undeniable Progress, but Big Gaps Remain

The “Valuing the Invaluable” series reports on the economic value of family caregiving and updates national and individual state estimates of the economic value using the most current data available. In 2013, about 40 million family caregivers in the U.S. provided an estimated 37 billion hours of care to an adult with limitations in daily activities. Family caregivers are an essential part of the social, health, and economic fabric of the U.S. long-term care infrastructure. But family caregiving often comes at substantial costs to the caregivers themselves, to their families, and to society.  Without family-provided help, the economic cost to the U.S. health and long-term services and supports (LTSS) systems would skyrocket. Click here to read more (

Caregiving in the United States 2015

A new report by the National Alliance for Caregiving and the AARP Public Policy Institute sheds light upon the challenges faced by caregivers of older adults and younger adults, and argues that much greater support is needed for family caregivers.  Click here to read more (

The Dual Pressures of Family Caregiving and Employment

Workers with caregiving responsibilities for an adult relative with a serious illness or disability make up an increasing proportion of the labor force. This report uses data from the Caregiving in the U.S. 2015 survey to shine a light on the dual responsibilities of employment and family caregiving and discusses the importance of arranging flexible work options and policies to provide family leave and paid sick days and prohibiting discrimination against workers with family caregiving responsibilities for an ill or aging relative. Click here to read more (

Family Caregivers and Managed Long-Term Services and Supports

This is the first major research report in the emerging field of managed long-term services and supports (LTSS) that addresses family caregivers’ needs. It highlights why managed care plans should involve family caregivers more closely in the assessment and care planning process, address their needs as part of managed LTSS, and begin moving toward person- and family-centered care. Click here to read more

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